Adventures with Rio
Welcome to my new blog! Before I go into specific details about living with my disability, I thought I would introduce myself. My name is Liz Hacker; I’m a junior. Since 2011, Thiensville has been home to me. When I’m not in school, you can either find me in my room listening to music and connecting with people through social media, namely YouTube or hanging out with family or friends. A camp in McNaughton, Wisconsin is my favorite vacation spot where I can get refreshed in nature.
While I do normal activities, the reality hits me, “ I still have a disability!” Cerebral Palsy…what’s that?! Cerebral Palsy is a disorder that damaged my brain at birth. Despite of my disability, I am smart. Due to my disability, I have spastic movements that are involuntary.
Most people don’t see the equipment I use day to day to help me thrive. I have only felt the sensation of wearing shoes without something supporting my ankles because I wear orthotics. Orthotics are a custom-made brace that I wear so my feet have as much support as possible because they can bend in contorted ways.
Snap, pop , blub blub blub, these are the noises I’m accustomed to when I eat because I’m tube fed. Being tube fed sometimes, is really frustrating when you are at a event that revolves around eating a meal. I have what I call “my second belly button,” where I have a peg in my stomach for getting my nutrition. Someone connects a plastic tube to the peg then puts a large syringe in the plastic tube.
I spend most of my day with my best friend Rio…oh wait, Rio is my power chair! I got her on the day of the opening ceremonies of the 2016 Rio Games.
I’ll be back next week for what a day is like at school for me!
Liz is a junior at Homestead. She moved to Thiensville in 2011. Her middle school years were not the best ones in her life; high school is so much better!...
Uncle Jim • Dec 15, 2016 at 10:46 am
Liz – thanks for filling us in on what is happening in your life. It helps us all to understand and understanding helps to bring us all closer.
Linda K Tucker • Dec 14, 2016 at 10:50 am
Great blog Liz! Keep up the good work! It is important to share your life experiences with others so we can all learn about and better understand disabilities!
Nona • Dec 13, 2016 at 10:26 pm
Love your blog Liz.
Carolyn • Dec 13, 2016 at 2:26 pm
Great job, Liz! I had no idea who Rio was, how is that possible??